Friday, March 9, 2012

Finally Home

We made it home from the hospital this afternoon after spending from Tuesday till now. My hubby called me at work to tell me that he was having chest pains. I asked him if he had tried his nitro and he said no. I told him to take that and after three he still had chest pains so the emergency room we went. He didn't have a heart attack, but we have issues to address and lots of doctor appointments. We just have to plan our next course of action. We know that his liver is going down hill and he is not a candidate for a liver transplant. They are afraid that he will be bleed to death because of his bleeding disorder where he doesn't clot good.
It has been a stressful few days with not knowing what is going on and still not feeling comfortable about the situation. I wasn't real happy at getting told that we should start thinking about things. I know that we are living on borrowed time, but my biggest thing who told us was a nurse practitioner and not the doctor. She said that she was speaking from experience because her mother was so ill.
We have been fighting his problems going on 13 years. He gave one of the night nurses a scare because the bottom dropped out of his blood sugar. I found out today they weren't giving him Novolog instead they gave him Humulog with his Levimir, We can't take Humulog . They told me that the insulin is the same as we used at home. They aren't the same and all medications does not work the same with everybody. I want to do some reading of your blogs hopefully later today, but right now I am off to the pharmacy. The calendar just has a lot of doctor appointments, but the nice thing  is they made the follow-up appointments before we came home. You all have a wonderful weekend.


Blondie's Journal said...

I am so relieved your husband didn't have a heart attack. That' the good news. And I hope in his upcoming appointments they can find something to help with the liver problems and keep from making mistakes with the medication.

I hope you can take time for yourself, Shirley...that is so important. When we are caregivers, everything else seems to take a back seat. Be good to yourself.


NanaDiana said...

God bless you, Shirley. It is hard to deal with the health issues, isn't it? I am sorry that you have to have this added stress in your life. I am keeping you in my prayers..and don't let yourself get so stressed out that your health is affected. xo Diana

Jil~Say It With Roses said...

Sweet are truly an angel with all you do! I am glad your husband did not have a heart attack and pray they can get all the meds corrected to work together!
I have been a caregiver and I know the worry and hard work!
I hope you can pace yourself so you do not wear down!
Know I am keeping you both in prayers!
Jil ♥

Debby said...

Oh no, sorry that you had another scare. I'm glad that it wasn't a heart attack. I don't understand why medical personel say things like that. The medicine issue always happens to us. No some are not the have to be your own advocate, don't you?
Hope you can rest this week-end and geet through that calendar of appointments. I don't know how you work and do all that. (((((HUGS)))))

Debbi said...
This comment has been removed by the author.
Debbi said...

You are one strong lady Shirley. Hang in there, we are all here to listen and support you with our prayers

ps...had to delete my last comment, it was full of typo's....

LuLu Kellogg said...

Sending hugs and prayers your way for you and your husband!


Dr. Kathy McCoy said...

I'm so sorry that you and your husband are having such stress, Shirley. It's really scary what can happen when someone is in the hospital and the wrong meds are given. I can see you being an essential advocate for him in this odyssey and that's so exhausting and frustrating. Please take care of yourself as well as your dear husband and know that you're in my thoughts and prayers!

vicki said...

Hi Shirley-
I'm so sorry to be late visiting you here--- I've been playing catch up since we got home from our travels.

I'm so sorry your husband has had another serious situation. I know you are beside yourself with worry about him. I'm hoping by now that things have settled down a bit and you can relax your worries some.

You are both ever constant in my prayers.